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Patient and public involvement in primary care research - an example of ensuring its sustainability

Dziedzic; Jinks

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Abstract

Background
The international literature on patient and public involvement (PPI) in research covers a wide range of issues, including active lay involvement throughout the research cycle; roles that patients/public can play; assessing impact of PPI and recommendations for good PPI practice. One area of investigation that is less developed is the sustainability and impact of PPI beyond involvement in time-limited research projects.

Methods
This paper focuses on the issues of sustainability, the importance of institutional leadership and the creation of a robust infrastructure in order to achieve long-term and wide-ranging PPI in research strategy and programmes.

Results
We use the case of a Primary Care Research Centre to provide a historical account of the evolution of PPI in the Centre and identified a number of key conceptual issues regarding infrastructure, resource allocation, working methods, roles and relationships.

Conclusions
The paper concludes about the more general applicability of the Centre’s model for the long-term sustainability of PPI in research.

Acceptance Date Jan 7, 2016
Publication Date Jan 14, 2016
Publicly Available Date Mar 29, 2024
Journal Research Involvement and Engagement
Print ISSN 2056-7529
Publisher BioMed Central
DOI https://doi.org/10.1186/s40900-016-0015-1
Keywords Patient and public involvement, Impact, Sustainability of PPI, Primary care research, Resource allocation
Publisher URL https://doi.org/10.1186/s40900-016-0015-1

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