Jinks, C, Carter, P, Rhodes, C, Taylor, R, Beech, R, Dziedzic, KS ORCID: https://orcid.org/0000-0002-1168-8993, Blackburn, SJ, Hughes, R and Ong, BN (2016) Patient and public involvement in primary care research - an example of ensuring its sustainability. Research Involvement and Engagement, 2 (1).

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Abstract

Background
The international literature on patient and public involvement (PPI) in research covers a wide range of issues, including active lay involvement throughout the research cycle; roles that patients/public can play; assessing impact of PPI and recommendations for good PPI practice. One area of investigation that is less developed is the sustainability and impact of PPI beyond involvement in time-limited research projects.

Methods
This paper focuses on the issues of sustainability, the importance of institutional leadership and the creation of a robust infrastructure in order to achieve long-term and wide-ranging PPI in research strategy and programmes.

Results
We use the case of a Primary Care Research Centre to provide a historical account of the evolution of PPI in the Centre and identified a number of key conceptual issues regarding infrastructure, resource allocation, working methods, roles and relationships.

Conclusions
The paper concludes about the more general applicability of the Centre’s model for the long-term sustainability of PPI in research.

Item Type: Article
Uncontrolled Keywords: Patient and public involvement, Impact, Sustainability of PPI, Primary care research, Resource allocation
Subjects: R Medicine > R Medicine (General)
Divisions: Faculty of Medicine and Health Sciences > Primary Care Health Sciences
Depositing User: Symplectic
Date Deposited: 18 Jan 2016 11:33
Last Modified: 16 Apr 2019 15:00
URI: http://eprints.keele.ac.uk/id/eprint/1390

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