Read, S, Estacio, EVG, Corcoran, P, Latham, D and Findler, L (2016) Bowel cancer screening and people with intellectual disabilities: working in co-production and establishing principles for good practice initiatives. Learning Disability Practice, 19 (8). pp. 33-39.

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Abstract

Bowel cancer is the fourth most common cancer in England, and with one in 20 people developing the condition, it is the second highest cause of cancer deaths. If diagnosed early, treatment can be more effective and bowel cancer screening programmes can reduce these mortality figures, yet for people with learning disabilities, the uptake of screening is significantly lower than the rest of the population.

Aims
To describe the process of co-production when working with a group of people with learning disabilities to explore why they may be reluctant to access bowel cancer screening.

Methods
A consultation meeting was held with one of the authors, six people with learning disabilities, an advocate and two specialist nurses. A feedback session was organised and a report using clear information was written in conjunction with the participants.

Findings
Participants discussed what gets in the way of attending for bowel screening and what might help to increase uptake, including awareness, support and clear information.

Conclusion
Working in co-production proved mutually beneficial as local clinicians also learned how to communicate more effectively with people who have learning disabilities.

Item Type: Article
Additional Information: This is the author's accepted manuscript of a paper published in Learning Disability Practice, published by RCN Publishing - the version of record is availble from http://dx.doi.org/10.7748/ldp.2016.e1766
Uncontrolled Keywords: empowerment, cancer, co-production, collaborative working, health promotion
Subjects: R Medicine > R Medicine (General)
R Medicine > RC Internal medicine > RC0254 Neoplasms. Tumors. Oncology (including Cancer)
Divisions: Faculty of Natural Sciences > School of Psychology
Depositing User: Symplectic
Date Deposited: 19 Aug 2016 11:30
Last Modified: 08 Apr 2019 15:54
URI: http://eprints.keele.ac.uk/id/eprint/2121

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