Pascal, JW and Sagan, O (2016) Co-creation or collusion: The dark side of consumer narrative in qualitative health research. Illness, Crisis and Loss. ISSN 1552-6968

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Abstract

Health, mental health, and social care policy are dominated by the imperative of employing person-centered approaches. Such involvement of the “consumer” is generally claimed to provide a counter-narrative to the psychiatric and medical paradigm of illness. Taking a critical and reflexive standpoint, we find ourselves asking: Is there a dark side to employing person-centered approaches and potential loss and risk to participants themselves? To explore these questions further, we undertook a condensed critique of the current mental health, health, and social care policy arena. We then move to methodological concerns about ways in which person-centered research, including our own, can inadvertently reproduce the neoliberalist agenda. To conclude, we offer our own lived experiences as a cautionary tale. We also posit that a post-Foucauldian governmentality framework can assist researchers to avoid contributing to the very problems we wish to resolve.

Item Type: Article
Additional Information: This is the accepted author manuscript (AAM). The final published version (version of record) is available online via Sage at https://doi.org/10.1177/1054137316662576 Please refer to any applicable terms of use of the publisher.
Uncontrolled Keywords: loss; bereavement; cancer; illness; qualitative data; research methods; phenomenology; theory; narrative; mental health
Subjects: H Social Sciences > H Social Sciences (General)
Divisions: Faculty of Humanities and Social Sciences > School of Social Science and Public Policy
Depositing User: Symplectic
Date Deposited: 01 Dec 2016 12:18
Last Modified: 08 Jun 2018 08:37
URI: http://eprints.keele.ac.uk/id/eprint/2565

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