Narayan, O and Davies, S and Tibbins, C and Rees, JM and Lenney, W and Gilchrist, FJ (2015) Developing a handheld record for patients with cystic fibrosis. Patient Related Outcome Measures, 6. 225 - 228. ISSN 1179-271X

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Abstract

Patient handheld records (PHHRs) promote self-management and empower the holder to take a more active role in the management of their disease. They have been used successfully in improving preventative care for children and have contributed to improved adherence in a number of chronic illnesses. Despite the potential advantages, there are no standard PHHRs for patients with cystic fibrosis (CF). We report the consultation process that led to the development of a CF PHHR, describe the final document, and analyze the feedback from their use at our center. We have made the CF PHHR freely available online.

Item Type: Article
Additional Information: This is the final published version of the article (version of record). It first appeared online via Dove Medical Press at https://dx.doi.org/10.2147%2FPROM.S86298 - please refer to any applicable terms of use of the publisher.
Uncontrolled Keywords: cystic fibrosis, patient and public involvement, patient handheld records, pediatrics
Subjects: R Medicine > RC Internal medicine > RC705 Diseases of the respiratory system
Divisions: Faculty of Medicine and Health Sciences > Institute for Science and Technology in Medicine
Related URLs:
Depositing User: Symplectic
Date Deposited: 28 Apr 2017 13:33
Last Modified: 17 Jul 2017 08:32
URI: http://eprints.keele.ac.uk/id/eprint/3324

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