Rosenfeld, D and Anderson, J (2018) 'The Own' and 'The Wise' as Social Support for Older People Living with HIV in the United Kingdom. Ageing and Society. ISSN 1469-1779 (In Press)

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Abstract

As the HIV population ages, how the ageing and HIV experiences intersect to shape the lives of older people living with HIV (PLWH) becomes an increasingly pressing question. This multi-method study investigated social support, mental health, and quality of life among 100 older PLWH in the United Kingdom. Drawing on data from three focus groups and 74 lifePage 1 of 33 For Review only 2 history interviews with older (aged 50+) white men who have sex with men (MSM), and black African and white heterosexual men and women, living with HIV, we explore participants’ distinctions between, evaluations of, and access to sources of social support. Participants distinguished between support from the HIV-negative (Goffman’s ‘the own’) and experientially-based support from other PLWH (Goffman’s ‘the wise’), and viewed the former, while valuable, as needing to be supplemented by the latter. Furthermore, access to experientially-based support varied across participant groups, whose communities had different histories with HIV/AIDS and thus different degrees of knowledge about HIV and avenues for connecting to other PLWH. Thus, social support among older PLWH cannot be neatly divided into ‘formal’ and ‘informal’ domains, or fully appreciated by applying traditional social support measures, including, in the context of health conditions, ‘peer support’ created through formal service organisations. Rather, older PLWH’s own distinctions and evaluations better illuminate the complexities of social support in the context of ageing with HIV. Keywords: social support, HIV, Goffman

Item Type: Article
Additional Information: © Cambridge University Press. This is the accepted author manuscript (AAM). The final published version (version of record) will be available online via Cambridge University Press at [insert hyperlink]. Please refer to any applicable terms of use of the publisher.
Subjects: H Social Sciences > HQ The family. Marriage. Woman > HQ1050 Aged. Gerontology (Social aspects). Retirement
R Medicine > RC Internal medicine > RC606.54 AIDS (Disease). Patients
Divisions: Faculty of Humanities and Social Sciences > School of Social Science and Public Policy
Depositing User: Symplectic
Date Deposited: 21 Jun 2018 08:24
Last Modified: 21 Jun 2018 09:25
URI: http://eprints.keele.ac.uk/id/eprint/5038

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