Skip to main content

Research Repository

Advanced Search

Improving the transparency of prognosis research: the role of reporting, data sharing, registration, and protocols

Peat, George; Riley, Richard D.; Croft, Peter; Morley, Katherine I.; Kyzas, Panayiotis A.; Moons, Karel G.M.; Perel, Pablo; Steyerberg, Ewout W.; Schroter, Sara; Altman, Douglas G.; Hemingway, Harry; van der Windt, Danielle

Improving the transparency of prognosis research: the role of reporting, data sharing, registration, and protocols Thumbnail


Authors

George Peat

Richard D. Riley

Peter Croft

Katherine I. Morley

Panayiotis A. Kyzas

Karel G.M. Moons

Pablo Perel

Ewout W. Steyerberg

Sara Schroter

Douglas G. Altman

Harry Hemingway



Abstract

Prognosis research is concerned with predicting outcomes to make health care more effective. It has a crucial role to play in clinical and policy decision-making. The quality of much prognosis research is poor, evidenced by incomplete reporting, poor data sharing, incomplete registrations, and absent study protocols. Initiatives to improve transparency in trials include reporting guidelines, data pooling, registers, and journal requirements for protocols. Prognosis research could be transformed by similar initiatives. Routine registration of all prognostic studies, linked to an accessible study protocol using agreed reporting guidelines, would improve transparency and promote data sharing. Concern about applying transparency methods to observational research could be resolved by flexibility to update date-stamped protocols during prognosis studies.

Journal Article Type Article
Acceptance Date Jul 8, 2014
Publication Date Jul 8, 2014
Publicly Available Date Mar 28, 2024
Journal PLoS Medicine
Print ISSN 1549-1277
Publisher Public Library of Science
Pages e1001671 -?
DOI https://doi.org/10.1371/journal.pmed.1001671
Keywords biomedical research, clinical protocols, humans, information dissemination, prognosis, vital statistics
Publisher URL http://dx.doi.org/10.1371/journal.pmed.1001671

Files




You might also like



Downloadable Citations