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Jinks, C, Carter, P, Rhodes, C, Taylor, R, Beech, R, Dziedzic, KS ORCID: https://orcid.org/0000-0002-1168-8993, Blackburn, SJ, Hughes, R and Ong, BN
(2016)
Patient and public involvement in primary care research - an example of ensuring its sustainability.
Research Involvement and Engagement, 2 (1).
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C Jinks - Patient and public involvement in primary care research - an example of ensuring its sustainability.pdf - Published Version Available under License Creative Commons Attribution. Download (1MB) | Preview |
Abstract
Background
The international literature on patient and public involvement (PPI) in research covers a wide range of issues, including active lay involvement throughout the research cycle; roles that patients/public can play; assessing impact of PPI and recommendations for good PPI practice. One area of investigation that is less developed is the sustainability and impact of PPI beyond involvement in time-limited research projects.
Methods
This paper focuses on the issues of sustainability, the importance of institutional leadership and the creation of a robust infrastructure in order to achieve long-term and wide-ranging PPI in research strategy and programmes.
Results
We use the case of a Primary Care Research Centre to provide a historical account of the evolution of PPI in the Centre and identified a number of key conceptual issues regarding infrastructure, resource allocation, working methods, roles and relationships.
Conclusions
The paper concludes about the more general applicability of the Centre’s model for the long-term sustainability of PPI in research.
Item Type: | Article |
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Uncontrolled Keywords: | Patient and public involvement, Impact, Sustainability of PPI, Primary care research, Resource allocation |
Subjects: | R Medicine > R Medicine (General) |
Divisions: | Faculty of Medicine and Health Sciences > Primary Care Health Sciences |
Depositing User: | Symplectic |
Date Deposited: | 18 Jan 2016 11:33 |
Last Modified: | 16 Apr 2019 15:00 |
URI: | https://eprints.keele.ac.uk/id/eprint/1390 |
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