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Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care.

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Abstract

Axial SpA (axSpA) can affect diverse elements of an individual's life. The areas affected can be much more wide-ranging than the historical medical model of SpA, causing increased disease activity (pain and stiffness) and disability (reduced range of movement and physical function). A more holistic view of the individual results in the realization that many other areas of life can be adversely affected by axSpA, from the ability to work effectively and function socially, to effects on quality of life and the onset of worsening fatigue or mood disturbance. A good understanding of these areas outside the medical model allows for an improved understanding of the overall life impact of axSpA. This highlights the importance of understanding how to measure these elements of life using patient-reported outcome measures that can truly reflect an individual's experience of axSpA. These measures can then provide a better insight into the risks and benefits of interventions and medications used to treat axSpA.

Acceptance Date Jun 5, 2018
Publication Date Nov 16, 2018
Publicly Available Date Mar 28, 2024
Journal Rheumatology
Print ISSN 1462-0324
Publisher Oxford University Press
Pages vi29 - vi34
DOI https://doi.org/10.1093/rheumatology/key200
Keywords ankylosing spondylitis, biologic therapy, health-related quality of life, holistic approach, spondyloarthritis, productivity, psychological distress
Publisher URL https://academic.oup.com/rheumatology/article/57/suppl_6/vi29/5184858

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