Mountford, W, Dening, KH and Green, J ORCID: https://orcid.org/0000-0002-2596-8013 (2020) Advance care planning and decision-making in dementia care: a literature review. Nursing Older People.

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Manuscript v3 Article - Dementia Decision-Making ACP - A Review.docx - Accepted Version

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Abstract

Dementia is the leading cause of death in England and Wales, but traditionally it has not been considered a terminal or life-limiting condition. As a result, little significance may be placed on advance care planning (ACP) for people with dementia. Evidence suggests that most patients with advanced dementia have often not been given an opportunity to complete an advance care plan and have not had conversations with their families about their wishes and preferences at the end of life. This article reports on a literature review that aimed to explore the evidence on the introduction of ACP in achieving preferred place of care or death for people living with dementia, and reducing carer burden. The literature review found that ACP discussions have several benefits for people with dementia and their family carers, but that various factors can support or hinder such discussions. It concludes that these people and their families need to plan for end of life and suggests that ACP can increase the likelihood of achieving their preferred place of care and death and reducing decisional burden for carers.

Item Type: Article
Additional Information: The final version of this Accepted Manuscript can be found along with all relevant details at the following link; https://journals.rcni.com/nursing-older-people/evidence-and-practice/advance-care-planning-and-decisionmaking-in-dementia-care-a-literature-review-nop.2020.e1238/abs
Uncontrolled Keywords: advance care planning - carers - clinical - dementia - dying at home - end of life care - families - good death - neurology - patients - patient engagement - professional
Subjects: H Social Sciences > HQ The family. Marriage. Woman
H Social Sciences > HQ The family. Marriage. Woman > HQ1050 Aged. Gerontology (Social aspects). Retirement
R Medicine > RC Internal medicine > RC521 Dementia
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Depositing User: Symplectic
Date Deposited: 23 Jul 2020 08:53
Last Modified: 23 Jul 2020 08:53
URI: https://eprints.keele.ac.uk/id/eprint/8416

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