Herron, DL, Priest, HM and Read, S ORCID: https://orcid.org/0000-0002-1955-4519 (2020) Supporting people with an intellectual disability and dementia: A constructivist grounded theory study exploring care providers' views and experiences in the UK. Journal of Applied Research in Intellectual Disabilities, 33 (6). 1405 - 1417.

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Abstract

BACKGROUND: There is a need to better understand the experiences and support needs of paid and family carers of people with an intellectual disability and dementia, and the role of Intellectual Disability Dementia Care Pathways (IDDCPs). This study explored the experiences of carers, and IDDCPs and other support structures within those experiences. METHODS: A constructivist grounded theory methodology was implemented. Data were obtained through 23 semi-structured interviews with two family carers, eight paid carers and eight healthcare professionals. FINDINGS: The study's theory produced five interrelated categories: Impact of Dementia, Challenging the Diagnosis Process, Continuum of Support, Continuity and Continuum of Understanding. CONCLUSIONS: Findings have demonstrated the importance of planning and supporting carers' holistic needs; the role of an IDDCP in the post-diagnostic support (or lack of it) for carers; and the importance of a timely diagnosis of dementia. Recommendations for practice are offered.

Item Type: Article
Additional Information: © 2020 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
Subjects: R Medicine > RC Internal medicine > RC521 Dementia
Divisions: Faculty of Medicine and Health Sciences > School of Nursing and Midwifery
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Depositing User: Symplectic
Date Deposited: 08 Jun 2021 08:17
Last Modified: 08 Jun 2021 08:17
URI: https://eprints.keele.ac.uk/id/eprint/9672

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