Paudyal, P, Apfelbacher, C, Jones, C, Siddiqui, S, El-Turki, A, DeGiovanni, C and Smith, H (2020) “DLQI Seems to be ‘Action’, and Skindex-29 Seems to be ‘Emotion’”: Qualitative Study of the Perceptions of Patients with Psoriasis or Eczema on Two Common Dermatology-specific Quality of Life Measures. Acta Dermato Venereologica, 100 (8). adv00105 - 6. ISSN 1651-2057

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Little is known about which quality of life measure best captures the lived experience of people with a chronic skin condition. The purpose of this study was to explore patients? views on the Dermatology Life Quality Index (DLQI) and Skindex-29. Participants were adults (n?=?28) with a diagnosis of eczema or psoriasis who completed the DLQI and the Skindex-29 before being interviewed about the content and format of these questionnaires. Interviews were analysed using content analysis. Participants were generally satisfied with length and layout of both questionnaires. However, the majority preferred the Skindex-29 for its ease of understanding, use of a longer recall period and incorporation of items on a variety of emotions. Participants reported both questionnaires failing to incorporate important aspects of their lives, for instance impact on professional relationships. Participants voiced limitations in both measures but overall felt Skindex-29 better captured their lived experience.

Item Type: Article
Additional Information: Copyright (c) 2020 Priyamvada Paudyal, Christian Apfelbacher, Christina Jones, Sanna Siddiqui, Aisha El-Turki, Claudia DeGiovanni, Helen Smith Creative Commons License This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License. All digitalized ActaDV contents is available freely online. The Society for Publication of Acta Dermato-Venereologica owns the copyright for all material published until volume 88 (2008) and as from volume 89 (2009) the journal has been published fully Open Access, meaning the authors retain copyright to their work. All published articles are published under CC-BY-NC licences, allowing third parties to copy and redistribute the material in any medium or format and to remix, transform, and build upon the material for non-commercial purposes, provided proper attribution to the original work.
Subjects: R Medicine > R Medicine (General)
R Medicine > RA Public aspects of medicine
Divisions: Faculty of Medicine and Health Sciences > School of Medicine
Depositing User: Symplectic
Date Deposited: 16 Feb 2023 12:39
Last Modified: 16 Feb 2023 12:39

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