Pascal, JW and Sagan, O (2016) Co-creation or collusion: The dark side of consumer narrative in qualitative health research. Illness, Crisis and Loss, 26 (4). pp. 251-269. ISSN 1552-6968

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Health, mental health, and social care policy are dominated by the imperative of employing person-centered approaches. Such involvement of the “consumer” is generally claimed to provide a counter-narrative to the psychiatric and medical paradigm of illness. Taking a critical and reflexive standpoint, we find ourselves asking: Is there a dark side to employing person-centered approaches and potential loss and risk to participants themselves? To explore these questions further, we undertook a condensed critique of the current mental health, health, and social care policy arena. We then move to methodological concerns about ways in which person-centered research, including our own, can inadvertently reproduce the neoliberalist agenda. To conclude, we offer our own lived experiences as a cautionary tale. We also posit that a post-Foucauldian governmentality framework can assist researchers to avoid contributing to the very problems we wish to resolve.

Item Type: Article
Additional Information: This is the accepted author manuscript (AAM). The final published version (version of record) is available online via Sage at Please refer to any applicable terms of use of the publisher.
Uncontrolled Keywords: loss; bereavement; cancer; illness; qualitative data; research methods; phenomenology; theory; narrative; mental health
Subjects: H Social Sciences > H Social Sciences (General)
Divisions: Faculty of Humanities and Social Sciences > School of Social Science and Public Policy
Depositing User: Symplectic
Date Deposited: 01 Dec 2016 12:18
Last Modified: 26 Feb 2021 16:05

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