O Narayan
Developing a handheld record for patients with cystic fibrosis
Narayan, O; Davies, S; Tibbins, C; Rees, JHM; Lenney, W; Gilchrist, F
Abstract
Patient handheld records (PHHRs) promote self-management and empower the holder to take a more active role in the management of their disease. They have been used successfully in improving preventative care for children and have contributed to improved adherence in a number of chronic illnesses. Despite the potential advantages, there are no standard PHHRs for patients with cystic fibrosis (CF). We report the consultation process that led to the development of a CF PHHR, describe the final document, and analyze the feedback from their use at our center. We have made the CF PHHR freely available online.
Journal Article Type | Article |
---|---|
Acceptance Date | Aug 13, 2015 |
Publication Date | Aug 13, 2015 |
Publicly Available Date | Mar 29, 2024 |
Journal | Patient Related Outcome Measures |
Publisher | Dove Press |
Peer Reviewed | Peer Reviewed |
Volume | 2015 |
Issue | 6 |
Pages | 225 - 228 |
DOI | https://doi.org/10.2147/PROM.S86298 |
Keywords | cystic fibrosis, patient and public involvement, patient handheld records, pediatrics |
Publisher URL | https://dx.doi.org/10.2147/PROM.S86298 |
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