O'Brien, AV, Bosworth, A, Cox, M, Jones, PW, Sargeant, I, Elliot, A and Bukhari, M (2015) Development and validation of a Patient Reported Experience Measure (PREM) for patients with rheumatoid arthritis (RA) and other rheumatic conditions. Current Rheumatology Reviews, 11 (1). pp. 1-7. ISSN 1573-3971

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Methods: Focus groups were held with RA patients to identify key elements of the patient experience. These were mapped against the UK Department of Health Patient Experience Framework and a PREM questionnaire developed with questions specifically relating to RA and rheumatology services. The RA PREM was piloted and Cronbach’s alpha used to assess internal consistency. The PREM was modified to capture experience of patients with other rheumatic conditions and further validated.

Results: Ten UK sites and 524 patients were included in the RA PREM pilot and validation analysis. The RA PREM reliably captured RA patient experience and had good construct validity. Cronbach’s alpha within the multiquestion domains ranged from 0.61 to 0.90 and the percentage agreement ranged from 22.5% to 70.4% with overall care. The modified PREM was evaluated in 11 UK sites and 110 patients with a range of rheumatic conditions. Cronbach’s alpha ranged from 0.76 to 0.91 and the percentage agreement similarly ranged from 70% to 90% with the question on overall care.

Conclusions: The RA PREM and the modified PREM provide new valuable validated tools for capturing the patient experience in a range of rheumatic conditions. The RA PREM is currently being used in a UK National Clinical Audit of Rheumatoid and Early Inflammatory Arthritis.

Item Type: Article
Uncontrolled Keywords: Patient Reported Experience Measure, rheumatoid arthritis.
Subjects: R Medicine > R Medicine (General)
R Medicine > RC Internal medicine > RC925 Diseases of the musculoskeletal system
Divisions: Faculty of Natural Sciences > School of Computing and Mathematics
Depositing User: Symplectic
Date Deposited: 10 Aug 2017 10:30
Last Modified: 03 Mar 2020 13:33
URI: https://eprints.keele.ac.uk/id/eprint/3502

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