Reeves, C, Lillie, AK and Burrow, S (2019) A review of end of life care for people with dementia in UK care homes: staff and family carer perceptions. Journal of Community Nursing, 33 (2). pp. 60-65. ISSN 0263-4465

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Dementia is the leading cause of death in England and Wales. Since the Dementia Strategy there has been an increasing emphasis on advance care planning, empowering people with dementia to express their wishes before mental capacity is lost, in order to promote a ‘good death’ enabling them to ‘die well’. This literature review of end of life care for people with dementia in English care homes shows that dementia is still not widely regarded as a ‘terminal condition’ and residents of care homes sometimes face unnecessary admissions to hospital in the dying phase. People with dementia at the end of their lives are still not accessing appropriate and timely palliative care routinely and advance care planning is still not part of routine dementia care despite the evidence and recommendations. This denies them the known benefits of reduced patient and carer distress, reduced hospital admissions, inappropriate treatments, upholding the principles of person centred care, decision making and ensuring that people with dementia can expect a ‘good death’.

Item Type: Article
Additional Information: This is the accepted author manuscript (AAM). The final published version (version of record) will be available online via PTM Publishing Ltd. at - please refer to any applicable terms of use of the publisher.
Uncontrolled Keywords: dementia, palliative, end of life, advanced care planning, care homes
Subjects: R Medicine > RC Internal medicine > RC521 Dementia
Divisions: Faculty of Medicine and Health Sciences > Primary Care Health Sciences
Depositing User: Symplectic
Date Deposited: 14 Feb 2019 11:11
Last Modified: 01 Apr 2020 01:30

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